Thank you for sharing your caring experience!

Between November 2015 and February 2016, The Caring Experience project was fortunate enough to meet family caregivers across Ontario through in-person workshops, online surveys, and in-depth journey mapping activities. This first phase of The Caring Experience project has now come to an end.

During this period, we met 100 caregivers at our 8 workshops across the province, heard 18 journey mapping stories, and received over 300 responses to our mini online surveys.

Thank you to everyone who shared their experience as a family caregiver! 



Here are a few preliminary results from the mini online surveys:


Next Steps

The Change Foundation is now working with Overlap Associates to review findings and develop major themes from the online surveys, Journey Mapping and Caregiver Workshop engagement exercises.

We have already accumulated a wealth of information and insights shared through each aspect of this project. From hearing the good, the bad, and the in between, this knowledge is truly invaluable and will be used to inform future work of The Change Foundation.

Stay tuned for the release of our findings later in 2016.


Phase II - The Caring Experience: Provider Engagement

The Caring Experience project is now entering the next phase of the project, led by The Change Foundation. The Caring Experience: Provider Engagement will include a series of engagement sessions and an online survey to health care providers to gain important perspective on their relationships and interactions with family caregivers. For more information on this new phase, please visit The Change Foundation website.



Looking for Support? Start Here!

A number of different organizations, groups, and websites exist in Ontario that can provide support and resources for family caregivers. Below is a list of starting points that family caregivers can contact to inquire about local services or to find peer support.

This list is in no way exhaustive and may miss some important resources that currently exist in your area. If you believe we are missing an important organization or service that others should know about, please contact us at


Provincial Resources

Ontario has a central community information line that can provide you with a wealth of information about resources in your community.  Click the link above or dial 211.
Find community services in your area of Ontario using the name of your community, postal code, or by map.

Community Care Access Centers
Ontario's 14 Community Care Access Centres (CCACs), located across the province, assist people in getting the home and community care they need in their region.

Ontario Community Support Association
OCSA is the voice of home and community support, representing hundreds of agencies, 25,000 staff, and 100,000 volunteers across Ontario.

Home Care Ontario
Home Care Ontario is a member-based organization representing providers of quality home care services from across Ontario.

Ontario Ministry of Labour – Family Caregiver Leave

Family caregiver leave is unpaid, job-protected leave of up to eight weeks per calendar year per specified family member.


Federal Resources

Service Canada – Being A Caregiver

Service Canada provides some links to supports and other resources provided by the Federal Government.

Canada Revenue Agency (CRA) – Family Caregiver Tax Credit

For 2014 and subsequent years, if you have a dependant with an impairment in physical or mental functions, you may be eligible for the Family Caregiver Tax Credit. Vists the CRA website for more information. 


Online Resources
Powered by Saint Elizabeth Health Care, Elizz delivers service, support, and new possibilities for those caring for others.

The Caregiver Exchange
If you’re caring for a family member or friend who is facing the challenges of age, disability, illness, or injury, can connect you with a wide range of information, services, and supports.

The Family Caregiver
The Family Caregiver website provides articles, resources, tips, and online forums for caregivers across Canada.

Caregiving Matters
Caregiving Matters is an internet-based registered charity offering education and support to family caregivers.

Canadian Virtual Hospice
The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers, and educators.

The Powerhouse Project
The Powerhouse Project offers online resources and articles for Ontario’s young carers – youth and young adults, who are in a caregiving role for a family member needing assistance with their daily-lived experience.


Caregiver Advocacy

Ontario Caregiver Coalition
The Ontario Caregiver Coalition is dedicated to recognizing the importance of unpaid caregivers in Ontario by raising awareness of the value they add to the health care system, and by advocating for improved, fair access to needed supports.  OCC strives to be the ‘voice’ of caregivers in the province.

Carers Canada
Established in 2000, Carers Canada is a virtual alliance of diverse partner organizations that work collectively, and autonomously, to identify and respond to the needs of caregivers in Canada.


Contact Us

For more information, or for questions on the next phase of The Caring Experience, please contact:

Catherine Monk-Saigal